Wyld Creativity: Coping

Monday, February 8, 2010

Coping

I am home from school today, I have yet another appointment with a doctor, this time it’s about my baby tooth, The infamous baby teeth that just won’t fall out, have gotten effected and will probably have to be surgically removed. Today I will figure out how much it cost’s to cut into the gums and bring down the big teeth that are stuck above them and weigh out different options for the future.

This is important but I have a lot on my mind that seems more important than my teeth. People close to me know that I have been going for Nemours MRI’s and they have shown some scaring on my brain. What has resulted is a meeting with a neurologist who has pointed me in the path of having MS.

After watching some videos and doing some reading about the subject I feel more and more that this is indeed what I have. When I lost the sight in my one eye last spring this was an episode, Optic Noritus. When reading about women who have MS, a lot of them have said this was the trigger that let them know they had MS. Also…woman with MS also experience facial pain and find it difficult to be intimate. Other things that can be effected is the bowls, feeling in the legs and arms, feeling fatigued and tired…and so much more.

See what happens is in the brain we have this casing around our nerves and when you have MS your white blood cells attack the casing and eat away at it…these nerves travel all the way down to your spine and can impact the nerves affecting all parts of the lower body including your legs. These things are answers to so many of the physical concerns I have been having over the last 2 years. Learning this information has made me feel relief because now I know I’m not crazy but at the same time sad because there doesn’t seem to be much to cure it. I know it’s important for me not to get sick because when I am my body will eat away more at the casing around my nerves, it’s complicated to explain but I am just trying to understand it myself.

So all signs are leading to this, often to have a diagnosis you need to get a spinal tap and this might have to happen but we’ll see what this next MRI determines. We want to see if more scaring has flared up..The Neurologist says it is good that I haven’t had another episode since my eye, but I think I have had some small episodes like my leg spazzing in the night and about 2 years ago having horrible pain in my tail bone whenever I sat down …this lasted for almost a month. Back many years ago I had brain fluid behind my eyes and experienced blurriness in my vision and had a lot of headaches…these may or may not have been related but I am getting the results of the MRI I had done back in 2002 to see what showed up then.

I am not sure what to do about things at this point, Some people with MS have had an episode and lost their eye sight forever, some have become unable to walk but trained themselves through therapy to walk again..some have few episodes and it’s not as severe. This is obviously what I am hoping for. I will find out more information from my Neurologist about getting on injections once a week …I would have to do this for the rest of my life but it helps prevent episodes, and the severity of the episodes. I have to do a lot more research and I am sure I will become an expert eventually but I am hoping for a cure so I can feel normal again. I have been reading a lot of forums and people have some really terrible experiences…I know I have Kyle’s undying love and support and I have family who loves me and A God who is always there so I know I will be okay. It’s a lot to think about and it’s something that can be treated and handled so I will just take it one day at a time and see what happens.

SO, this is what is on my mind I, just had to get it off of my mind for a little while. I appreciate everyone’s love and support. You guys Rock and I love you.

1 comment:

Heidi said...: Heather, this news is so sad, yet you are so positive. I don't know how you can keep so optimistic - keep it up!

Know that we love you. And what happened in 2002 - I had no idea. You need to let us know what's going on!

We'll be praying for you. I'll also pray your baby teeth will come out without too much hassle. Mouth pain is soooo painful.

Love you girl

Heidi; February 8, 2010 at 10:33 AM

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The Story of a Prince and a Girl who Dreamed of finding Her Prince.

Once upon a time there was a young woman named Ruby; she lived in a far way kingdom where only the stars in the sky could light the way. The kingdom was tall and made of stone. Inside, it had all of the finest linens and tapestries with winding stair cases, golden mirrors and exotic flowers that stretched the kingdom’s stone walls. The kingdom was surrounded by a large creek bed and had a large wooden draw bridge outside the tall black iron front gates. Beyond the kingdom were many forests, pastures, rivers and hills.

The young woman lived in the kingdom with only her two servants Nigel and Jasmine. They had been with Ruby ever since her mother gave birth to her and have cared for her and loved her since the great royal war that took her family tragically away from her. Years had past since then and Ruby was a young woman now. Since the great royal war she had not seen another person beside her servants. The lands had been deserted as other kingdoms were destroyed and abandoned. No one knew this kingdom existed. It stood in a far off place that only one deserted over grown pathway in the forest would lead to.

Ruby spent her childhood growing up playing with all the animals in the forest, she had names for all of them and would spend her days dancing in the pastures and walking along the creek bed throwing stones into the water. She was content those days as she lived free and enjoyed every tree, every stone, and every pathway near the kingdom. She loved her home but she missed her family and many times she felt alone.

As Ruby grew older she began to stop playing in the pastures and instead she spent her days walking along the creek bed dreaming of finding love and not being alone anymore. Every night outside her balcony she would spend time looking out into the stars and making wishes that one day soon a wonderful man would find the unmarked path in the forest that would lead him to her kingdom.

Nigel and Jasmine were very old now; Ruby took time to care for them and tended to their needs. She would gather food from the garden and make them food to eat and get them blankets to make sure they were comfortable when it was cold. She was not sure how much longer they would live but one thing she knew was how much she admired they’re love for one another and she hold that in her heart for as long as she lived.

It was a warm fall evening; the leaves from the trees were lightly falling as the sun began to set. Ruby was standing on her balcony in her long white silk night gown. As the dark sky began to shine, a light breeze bustled against her gown and her long brown hair blew lightly in the wind. She stood with her hands on the balcony ledge and wished to the stars like she had so many nights before singing” Star light Star bright bring my prince home to me tonight” She stared up into the dark blue sky and began to talk more to the shinning stars.

Just as she was looking up into the sky, talking to the stars a man was following the pathway from the forest that leads to Ruby’s kingdom. He was beginning to approach the edge of the pathway he had began journeying on earlier that day and was about to step on to a beautiful white shiny stoned pebble walk way that would lead up to a draw bridge and to Ruby’s kingdom.

The young man had been travelling for months only eating what he could find along the pathway. Henry was a prince from the golden city of Persia. He was on an expedition when he was captured by rivals and taken to a far away land where he was imprisoned in a place he did not know. Months ago after many nights planning Henry escaped while the guards were sleeping. He thought he would be able to journey home by recognizing land marks but once he had fled the guards he realized that he was further from home then he ever imagined and much to his dismay he did not recognize any of his surroundings. He had been following the sun in hopes of finding his way home. Each day he walked further hoping that one day the pathway would lead him to his family.

Earlier that day Henry had been walking though the forest with large green bushes and fruitful trees around him when he saw a small unmarked pathway that was ragged and old. There were no fruit trees, only old tall trees and an old pebble pathway that seemed run down and abandoned.

He was going to continue to walk on the pathway he had been but something caught his eye as he walked past this abandoned trail. Henry saw a small red ruby attached to a ring lying in between some wet leaves. The sun was shining on it and it glistened and shinned at him. He bent down and lifted the leaves around it away and dusted the ring off and looked at. The ring was prestigious and fit for a princess. He thought about continuing on the main pathway road through the forest but he was drawn down this unmarked pathway. He wondered if this ruby red ring belonged to someone. He put the ring in his pocket and began to walk along the jagged unmarked pathway. He noticed that there were no markings along this pathway so it appeared that no one had walked this pathway for many years.

To Be Continued…

Wyld Creativity

Overcome.

Monday, February 8, 2010

Coping

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